SEB'S FIGHT

Seb's Story

Seb’s Journey

Seb’s story is one of courage, resilience, and deep community support. What began as a simple illness quickly became a life-altering battle for health, home, and hope.


May 2023

Seb became suddenly unwell after a bout of gastro. He rapidly lost weight, began experiencing loose stools with blood, and showed no signs of improvement.
Multiple emergency visits and blood tests revealed chronic inflammation and elevated liver enzymes, indicating serious internal stress.


July – August 2023

After several hospital stays, Seb was referred to the Gastroenterology team at the Royal Children’s Hospital.
A colonoscopy and endoscopy confirmed a dual diagnosis:
🩺 Crohn’s Disease and Ulcerative Colitis.


September 2023 – April 2024

Seb began treatment and slowly stabilised.
He regained the 11 kilos he had lost, started high school, and began enjoying life again.


May 2024

Seb’s health took a sudden turn when a new medication, Mesalamine, caused a severe allergic reaction.
He was rushed to the Royal Children’s Hospital with Acute Pancreatitis.
Seb’s weight dropped drastically, from 48kg down to 40kg within weeks.


June 2024

We made our first shocking discovery:
💥 Hidden toxic mould inside our bathroom walls and floor.
As we began demolition, we found rotten framework, soaked subflooring, and dangerous black mould.
We had to remove our only bathroom and begin the search for mould illness specialists.


August 2024

Seb began seeing a Functional Doctor specialising in Mould Toxicity and Autoimmune Conditions.
Testing revealed Seb had mould levels 15x the safe limit, with all five toxic species detected in his system.


September 2024

Seb endured another 8-day hospital stay as he detoxed from mould exposure.
His weight dropped to a critical 36kg, and he was fitted with a life-saving feeding tube.
A positive sign: his liver function returned to normal once he was out of the toxic environment.


November 2024

After further testing of our home, we made a second devastating discovery:
🔎 Seb’s bedroom and our main bedroom also contained unsafe levels of toxic mould—despite the bathroom now testing clear.
We were forced to gut our entire home, tearing out walls, ceilings, insulation, flooring, and tiles.
We lost everything—furniture, clothes, bedding, mattresses.

💔 Insurance didn’t cover any of it.

But something beautiful happened…


Our Community Stepped In

  • Axon Plastering donated a full home’s worth of plaster, plus their labour

  • Stevo’s Inso installed donated insulation

  • Colin Reid Painting, with paint donated by Dulux, repainted the entire home

  • Mus from Dulux Paints had paint donated

  • Charlie from Charlies Maintenance finished the bathroom for us

  • Isaac from Power Rangers Electrical donated his trade.

We are endlessly grateful for the angels who helped us begin again.



March – April 2025

Seb had two more hospital admissions:
🗓️ March 1st–14th and April 20th–24th, continuing treatment for his IBD and pancreatitis flare-ups. His liver health still needs attention. 


He is currently on monthly autoimmune-suppressing infusions, with ongoing testing for pancreatic and liver health. IBD is starting to come under control. 


 

Where We Are Now

Seb is rebuilding—slowly, bravely, beautifully.
He is healing not just from disease, but from trauma, loss, and disruption.
Thanks to a community of support, he has a safer space to rest, recover, and just be a kid again.

We’re still walking this road one day at a time—and we’re so grateful you’re walking it with us. 💛

Media articles:

Family  forced to gut toxic home

https://www.geelongadvertiser.com.au/news/geelong/lara-family-forced-to-gut-home-and-move-out-over-toxic-blackmould-infestation/news-story/efbacfe307cc7ffbd6d365434a9f862c

Lara family Nightmare

https://www.geelongadvertiser.com.au/news/geelong/lara-family-reveal-teens-health-nightmare-after-black-mould-infestation-discovered-in-home/news-story/4a00b6a61ce0ec14f51849e8d213b06d

Angel Tradies Save the Day

https://www.geelongadvertiser.com.au/news/geelong/tradies-band-together-to-save-family-from-black-mould-nightmare/news-story/b67c3d32f39fc5a6537bc8a824e68e07

Axon’s Plastering Offers to Fix Home

https://www.geelongadvertiser.com.au/news/geelong/geelongs-axon-plastering-offers-to-fix-lara-home-for-free-after-familys-black-mould-nightmare/news-story/14e30b3659d70107302c13bbee7335f2